The Children’s Institute
There are times when a
person with PWS develops behavioral or health problems that are simply too
difficult to handle at home or in a residential program. When this happens, one
option is to pursue treatment at the Children’s Institute in Pittsburgh. The
Children’s Institute is the only in-patient treatment program for children and
adults with PWS in the United States. Using a comprehensive medical team
approach, the Children’s Institute addresses, generally over a 30-60 day period,
the behavioral and medical needs of the person and works with the family or
caregiver to establish a plan for follow up when returning home. If you would
like to learn more about the Children Institute’s program, visit
http://www.amazingkids.org/content.aspx?SectionId=1&SubSectionID=5#Prader and call or
e-mail us for intake contact information.
Two Common Obstacles to
Treatment at the Children’s Institute:
1.
It can be especially challenging
to obtain funding for treatment at the Children’s Institute. If your loved one
is being denied funding for treatment by Medicaid or a private insurance company
let us know and we can provide a support letter on your behalf.
2.
Traveling to the Children’s
Institute can be expensive. If you are unable to afford transportation, please
contact some of the free medical transportation programs listed in our “Links
and Resources” section. If none are able to help, let us know. We will work
with you to find the resources to cover the transportation costs.
Our son who
is 13 went to the Children’s Institute in Pittsburgh weighing 343 pounds and
totally out of control. As of today he is 238 pounds and a model of diet
and exercise. The change in him is amazing. His goal is 150 and he is
determined to do it. We take each day one at a time and pray he sticks with
it. What they taught and instilled in him in Pittsburgh in 10 weeks saved
his life.” – A parent of a child with PWS
Red-Yellow-Green Weight Control System booklet from TCI
[Click
here]
Links and Resources [Click here]
Free Medical Transportation
edited:
02/09/2012
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